Which charities offer neonatal death support in the UK?


These are the charities that can offer support to those affected by neonatal death (Picture: Getty Images)

The loss of a child during pregnancy, birth, or after is one of the most heart-breaking things a parent can endure.

According to Macro Trends, The infant mortality rate for the UK in 2021 was 3.507 deaths per 1000 live births, a 2.39% decline from 2020.

With Christiano Ronaldo and Georgina Rodriguez announcing the loss of their newborn son, celebrities, football clubs, and organisations across the world have shared their condolences for the couple’s loss.

If you have been affected by neonatal death, either directly or through friends and family, these UK-based charities can help provide support…

Sands

The Stillbirth and Neonatal Death Charity, also known as Sands, provides support to anyone affected by the death of a baby.

The charity offers everything from helplines to in-person groups, an online Facebook community, and even its own app.


Pregnant woman taking pill at home

Many charities in the UK offer support to those affected by neonatal death (Picture: Getty Images)

Sands also provides memory boxes for parents and families to honour their baby.

There are also lots of useful articles on their website for parents trying to navigate loss as well as for those around them wanting to offer support.

For more information on Sands, click here.

Lily Mae Foundation

The Lily Mae Foundation was founded in 2010 by Ryan and Amy Jackson following the loss of their daughter Lily Mae.

The charity supports families who have experienced neonatal death, stillbirth, miscarriage, and terminating a pregnancy for medical reasons (TFMR).

The foundation offers one-to-one support as well as monthly support meetings.

They also provide access to a rainbow baby group, pregnancy after loss support, and therapeutic play and creative arts therapy.

For more information on the Lily Mae Foundation, click here.

Lullaby Trust

The Lullaby Trust is aiming to prevent unexpected deaths in infancy and promote infant health.

As well as providing safe sleep guidelines for children, the trust also offers bereavement support.

There is a helpline and webchat in place for parents and loved ones to use as well as in-person group days, booklets, and care of next infant services for those that go on to have another child after loss.


A baby being held by its mother

Support groups may be available online, over the phone, and in person (Picture: Getty Images)

The trust also has tools to allow parents to create a memorial website for their child as a special way to remember them.

For more information on The Lullaby Trust, click here.

Tommy’s

Tommy’s is the largest UK pregnancy and baby loss charity, funding research into stillbirth, premature birth, and miscarriage.

The charity provides support for anyone who has experienced miscarriage, stillbirth, neonatal death, ectopic pregnancy, molar pregnancy, and TFMR.

Tommy’s also gives support to those trying for a baby, experiencing pregnancy, and parenting after loss.

The charity also conducts more than £2 million worth of research every year into the causes of miscarriage, stillbirth, and premature birth.

For more information on Tommy’s, click here.

The Miscarriage Association

Those who have experienced pregnancy loss can contact The Miscarriage Association for information and support.

The charity has an online chat as well as a helpline and in-person support group to help those in need.

Their website also provides access to information surrounding baby loss as well as links to external research,

For more information on The Miscarriage Association, click here.

The Ectopic Pregnancy Trust

The Ectopic Pregnancy Trust aims to raise awareness of the life-threatening condition as well as supporting those affected by it.


A pregnant woman touches her baby bump

Support is also available for loved ones affected by neonatal death (Credits: Getty Images/iStockphoto)

The charity can support people through loss, trying for a baby and parenting after loss, and communicating with loved ones.

There is also an online forum you can join to talk to other users who have also experienced Ectopic Pregnancy.

For more information on The Ectopic Pregnancy Trust, click here.

ARC

Antenatal and Results Choices, also known as ARC, helps parents and professionals through antenatal screenings and TFMR.

The website includes booklets with information on TFMR, looking ahead to another pregnancy, talking to children, and help for fathers and grandparents.

ARC also helps those who receive news their child will have a genetic or structural condition following antenatal testing through their pregnancy as well as after birth.

For more information on ARC, click here.

Twins Trust

Twins Trust offers bereavement support for those who have lost twins, triplets, or more during or after pregnancy.

The charity offers a befriending service for peer support as well as a private and public Facebook group.

There are also leaflets with information surrounding neonatal death available on their website.

Purple butterfly cot cards are also available to display in a surviving twin or triplet’s incubator during a hospital stay, as well as an online remembrance wall and access to certificates of birth for children sadly no longer here.

For more information on Twins Trust, click here.

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